April is Parkinson’s Awareness Month. Everyday, we hear from our clients that they wish people could understand their daily struggle and know that Parkinson’s is more than a tremor. Parkinson’s is a progressive, neurodegenerative disorder, meaning, it progresses and so does the intensity and severity of symptoms.
Tremors are just the surface issue. Depression, anxiety, restless legs, loss of independence through the loss of a license, ability to dress or bathe. The list of how Parkinson’s can affect someone is endless.
Parkinson’s not only impacts the person diagnosed, but their loved ones. Often, a carepartner is just as impacted as they invest in and work tirelessly to support their partner.
Below, are a few stories of how people living with Parkinson’s are impacted – and yet – prove they are more than their diagnosis. This April, choose to see the person behind the tremor – behind the diagnosis and choose to be part of the hope of bringing support and education into our communities.
“I continue to participate in ‘Rock Steady Boxing,’ knowing it helps maintain my muscle strength throughout my body.”
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“I’m not going to give up. I know there’s a whole lot of other people out there who are in the same situation I am who are not giving up either. We can’t. It’s too important.”
“There’s so much benefit to singing because it’s one of those interventions that’s joyful… and it really works the diaphragm, the respiratory system, and really works on breath support.”
“There are so many things you do have control over. The first thing is attitude. You can choose to stay curious, keep learning, and live fully – even with Parkinson’s.”
“I just keep looking forward. The music really brings me up, you know? I try to make the best of the situation. I may not be who I was, but I’m still here – and I’m still me.”
“I had always been a nervous person so I didn’t really realize that it was an issue. But little things started happening, my left leg would tap when I’d drive to work and I started getting tremors in my hand.”
“The Parkinson’s Society of Southwestern Ontario is also a great educational organization. Having conferences where experts come in and tell us about the latest research, what you can do for exercise, how nutrition effects your Parkinson’s, how caretakers can provide better care.”
“I think it’s a great way for me to be able to meet people in a new community, to help, and to listen, and to learn. It’s also an incredible group of people. They’re really, really fun.”
“It’s hard to know what information is out there, where to get it, and who to trust. This type of organization can put you in contact with the best and most up to date information that might be relevant for you. As well as just provide that support network to know that you are not alone.”
“I have been able to attend online support groups for young onset Parkinson’s. I feel like I learn something every time. I connect with people who are in a similar situation and I feel supported and valued.”
“We had 53 beautiful years together”
“I used to go for 4-5km walks a day, now I can’t do that at all. Parkinson Society has lots of resources, it’s nice to have people who know what you’re going through.”
” I know this disease will slow me down, but I am bound and determined that it won’t stop me.”
“I wanted to support my brother-in-law through this ongoing disease”