More Than You Can See
April is Parkinson’s Awareness Month. Everyday, we hear from our clients that they wish people could understand their daily struggle and know that Parkinson’s is more than a tremor. Parkinson’s is a progressive, neurodegenerative disorder, meaning, it progresses and so does the intensity and severity of symptoms.
Tremors are just the surface issue. Depression, anxiety, restless legs, loss of independence through the loss of a license, ability to dress or bathe. The list of how Parkinson’s can affect someone is endless.
Parkinson’s not only impacts the person diagnosed, but their loved ones. Often, a carepartner is just as impacted as they invest in and work tirelessly to support their partner.
Below, are a few stories of how people living with Parkinson’s are impacted – and yet – prove they are more than their diagnosis. This April, choose to see the person behind the tremor – behind the diagnosis and choose to be part of the hope of bringing support and education into our communities.
Dan Parkinson
“I’m not going to give up. I know there’s a whole lot of other people out there who are in the same situation I am who are not giving up either. We can’t. It’s too important.”
See Dan’s Story
Barbara Salsberg Mathews
“There are so many things you do have control over. The first thing is attitude. You can choose to stay curious, keep learning, and live fully – even with Parkinson’s.”
See Barbara’s Story
Sophia Christopher
“There’s so much benefit to singing because it’s one of those interventions that’s joyful… and it really works the diaphragm, the respiratory system, and really works on breath support.”
See Sophia’s Story
Bobby Gouin
“I just keep looking forward. The music really brings me up, you know? I try to make the best of the situation. I may not be who I was, but I’m still here – and I’m still me.”
See Bobby’s Story
Dan Parkinson
After 45 years of service in policing, Dan was gearing up for a well-earned retirement filled with plans. But life threw him a curveball — a Parkinson’s diagnosis. Despite the unexpected turn, Dan is using his strength and resilience to face this new chapter head-on. Instead of slowing down, he’s showing us what it means to stand tall — and support others doing the same.
Sophia Christopher
With a background in vocal therapy and a heart for community, Sophia leads a choir unlike any other — one designed specifically for people living with Parkinson’s. Her sessions aren’t about perfection or performance. They’re about healing, empowerment, and joy through song.
Barbara Salsberg Mathews
Barbara’s journey with Parkinson’s is one of deep reflection — and bold action. She’s decided to focus her energy on the present, cutting out negativity and embracing what brings her joy. Whether it’s connecting with support groups or dancing when the music hits, Barbra’s not letting Parkinson’s write her story — she’s writing it herself.
Bobby Gouin
A lifelong musician, performer, and hard worker, Bobby’s world changed dramatically after his Parkinson’s diagnosis. He didn’t just lose mobility — he lost his voice, his band, his marriage, and his confidence. But despite it all, Bobby shows up — for himself, and for others. Through support groups, a deep love of music, and sheer willpower, he’s learning to live forward, one beat at a time.
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Kelly Tiede
“I had always been a nervous person so I didn’t really realize that it was an issue. But little things started happening, my left leg would tap when I’d drive to work and I started getting tremors in my hand.”
See Kelly’s Story
Lloyd Longfield
“The Parkinson’s Society of Southwestern Ontario is also a great educational organization. Having conferences where experts come in and tell us about the latest research, what you can do for exercise, how nutrition effects your Parkinson’s, how caretakers can provide better care.”
See Lloyd’s Story
Kerry Jarvi
“I think it’s a great way for me to be able to meet people in a new community, to help, and to listen, and to learn. It’s also an incredible group of people. They’re really, really fun.”
See Kerry’s Story
Dr. Kaylena Ehgoetz Martens
“It’s hard to know what information is out there, where to get it, and who to trust. This type of organization can put you in contact with the best and most up to date information that might be relevant for you. As well as just provide that support network to know that you are not alone.”
See Kaylena’s Story
Tristan O’Malley
“I have been able to attend online support groups for young onset Parkinson’s. I feel like I learn something every time. I connect with people who are in a similar situation and I feel supported and valued.”
Read Tristan’s Story
Monica Bos
“I used to go for 4-5km walks a day, now I can’t do that at all. Parkinson Society has lots of resources, it’s nice to have people who know what you’re going through.”
Read Monica’s Story
Harry Schut
” I know this disease will slow me down, but I am bound and determined that it won’t stop me.”
Read Harry’s Story
Robert + Chris’ Story
“I wanted to support my brother-in-law through this ongoing disease”
Read Robert + Chris’ Story